Well, Abbie had her swallow study yesterday and she did pretty well. She doesn't aspirate (swallow down the wrong tube) anymore so they gave us the go ahead to try feeding by mouth. This is great news but just because we CAN try to feed her, doesn't mean Abbie WANTS us to try and feed her. They practically had to force her to swallow. She fought it every step of the way and pushed most of the liquid out with her tongue. We're supposed to try and get her used to having liquid in her mouth by dipping her binkie in formula and getting her to suck on it. I have tried several times since our appointment and she just keeps pushing the binkie and formula out with her tongue. It looks like we're probably going to have to find a feeding therapist that specializes in oral aversions if we want to make any progress with her feeding.
We are going to move her tube up from her intestines into her stomach within the next few days and we'll see how she tolerates that. Despite the fact that this is going to be a long road, she is progressing and that's really all we can ask for. Even though this whole process has been challenging, we are so happy that she is part of our family and we love watching her grow and change each day!
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That's good news! I know it won't be fun, but just think how great it will be when she can finally eat and there's no more feeding tubes! Yay! Hang in there!
ReplyDeleteThat's good news! Godd luck with getting her to do all that.
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