Thursday, June 17, 2010


I love chili!!

Abbie has officially gone one entire month without using her feeding tube!! We are so excited and so happy with her progress! She's still on the small side, weighing in at just under 20 lbs, but she's still on the growth charts and she's still gaining weight (very slowly, but at least she's gaining). Her favorite foods are Mac'n'cheese, chili, jam sandwiches, green beans, broccoli, chicken and rice, and cheese. She's really not very picky, but it takes a lot of effort every day to make sure she gets enough food. Hopefully things will continue to get better and she'll start eating more by herself, without so much help from mom. As for the drinking, she is doing excellent! She drinks 2-3 cups of milk mixed with pediasure from her sippy cup with no problem. Sometimes, I think back to the days when we were happy because she drank one ounce from her bottle and I can't believe we finally made it to this point! We don't know how long Abbie will need to go tube-free before they'll take the actual tube out, but that's not really a big deal for us right now.

Yummy mac'n'cheese!

On another note, Abbie had a cardiology appointment a week ago and everything was just great. In fact, the doctor took Abbie off of her last medicine, so we are officially medicine-free! Yipee! So Abbie is pretty much a normal, happy little girl. We are so proud to be the parents of such a little fighter! We love you Abbie!!

My sippy is my best friend!